It’s been just about a month since I told you WUL’s publishing schedule would be indefinitely halted. Well… I’m back! More or less, that is…
Many of you have asked, so here is what happened and how the last month went.
Remember I told you I had to undergo a laparotomy (that’s abdominal surgery, where they cut into your tummy, not fun) to have a mass on one of my ovaries removed. Even though my doctor had done an ultrasound prior to surgery, she couldn’t really tell what it was until they went into me, so to speak.
So on September 3, I was admitted into the hospital where both an OB/GYN (the main surgeon) and a GYN/oncologist (GYNs trained to diagnose and treat related cancers) did exactly that – cut into me.
In the OR
What they found was not malignant, thank goodness, but a 7 cm endometrioma (a cyst caused by the prevalence of endometriosis, which I was diagnosed with in 2004).
That’s about the diameter of a guava, or a small apple. And this puppy was thwacked all over my left ovary (I keep wanting to type “My Left Foot” for some reason) to the point where the ovary was unrecognizable, and my left fallopian tube was completely damaged. So both those came out as well.
Apparently the right set wasn’t looking too good either, but since all this had happened rather suddenly and the docs only had permission to remove the left set if they had to, they left the right set alone. Which means that, if the endometriosis is not kept under control, I may have to go through all this again, but we won’t go there right now.
Recovery is tiring
I was in the hospital for two and a half days, and felt like crap the first day and night. Not that I didn’t feel like crap the next day, but I started recovering – in medical terms, at least – pretty quickly. There was a lot of pain but I have to hand it to the nurses; they got me up and moving the day after the surgery. At a snail’s pace, I might add, but still, it was something.
And after watching CNN and ESPN for hours on end, I was ready to do whatever I needed to to continue my recovery on at home. So on Day 3, they discharged me, and I did just that – came home.
The first two weeks were really tough. I was extremely tired – much more tired than I thought I’d be, so work was out of the question. Twitter? Facebook? Ha! No way.
Before the surgery, I’d imagined working on my laptop while in bed. Ha! Not half likely. My entire abdominal area was bloated, and the closer you got to the incision, the more tender and numb (yes, both at one time) it felt. All I wanted to do was sleep and, when I was awake, watch bad TV (“Bridezillas,” anyone?).
Thanks to the tightness in the incision area, getting up/down was agony. Laughing was agony. I used to pinch my nostrils so that I wouldn’t sneeze and was terrified of coughing. Walking – even at an extremely slow pace, which was all I could muster – made me feel precarious. Climbing stairs was an ordeal.
For 10 days I couldn’t even sleep in my own bed, since it’s fairly high, and I couldn’t lift my left leg without excruciating pain. So I spent the first week and a half on a low couch which, no doubt, subconsciously made me want to get well even more, if nothing else, so that I could sleep in my own bed!
Picking up the pace
After the first couple of weeks, I started getting better much more quickly. I was still tired, but as long as I didn’t push myself (even to get online), that diminished every day, and my energy started to come back. My stomach got a little less bloated every day. I moved back into my bed, and started sitting up and walking around more (which I tried to do every day as therapy anyway).
And last week I was able to actually sit at my desk and work. And I was thrilled when I drove myself to get a blow dry this past weekend. Almost back to normal!
Not quite 100%
In terms of whether I’m 100%… no, I’m not. I’m walking more or less normally, but I can’t run, jump, bend or stretch completely, and I’m still forbidden from lifting anything heavy. My stomach is still a little bloated, sore in places, as well as numb in a few areas. I’ve been told to hold off on exercising for at least another month, and to then “listen to my body.” Which is all rather frustrating, since I miss exercising very much.
But I know I have to play it safe, else I could go back to the hospital with a hernia. And I do not want to be cut into twice in one year.
Right now I’m at about 80%, but that’s pretty good. In fact, my doctor cleared me to travel, so as you read this, I’m getting ready to leave for Lincoln, Nebraska, where I will be speaking later today at the University of Nebraska. And I’m looking forward to catching up with a lot of my industry colleagues and friends at the PRSA International Conference in Orlando in a couple of weeks.
So while I’m still playing catch up with email, social media, blogging, and so on, I’m definitely getting back on track. It will take me just a little while longer to get “normal,” but I’m getting there.
Thank you
I have so many people to thank for helping me through my recovery, I know I’d leave someone out if I started naming names. But I have been absolutely overwhelmed at the concern and kindness shown to me by so very many people; from all the good wishes you left on my last post, to coming over to my house to watch over me when my husband couldn’t be there, to cooking food for me and bringing it over, to cooking food for me in my kitchen, to sending me beautiful flowers, books, emails, prayers, wishes, chicken pot pies (yes!) … thank you all so, so much.
And I hope you never have to go through anything like this, but if you do, I wish you a spouse/partner like mine, who was (and is) absolutely marvelous in his caring for me.
Say something
I’ve been very open with my medical condition because, as I said in my last post, if someone had paid attention to my symptoms earlier on, I may not have had to suffer as much as I have from this disease. Endometriosis is an insidious disease. It is a heartbreaking disease. I mean, it’s a disease that can’t even be diagnosed until and unless you’re operated on!
As incredible as that sounds, it’s true.
If, by being open about what happened to me, I can encourage you to speak up, ask questions, not to be satisfied by what the doctors tell you if your gut tells you so, then at least this experience will have helped someone.
So please – if you feel something, say something. Don’t stop saying it until you’re paid attention to.
Back to blogging
And as for Waxing UnLyrical, it’s back. You’ll have a few more guest posts than usual as I ease back into blogging and editing, but we’re back. Many thanks to all my guest posters for helping out… and thank you for hanging around!
Image: James F Clay via Flickr, CC 2.0
[…] am thankful that I have recovered well enough from my surgery to be able to travel to a country I have always wanted to visit, when two and a half months ago I […]
[…] been about a month since I started working out again (remember I had surgery in September, which meant I couldn’t do anything – literally – for about eight […]
[…] It’s pretty pathetic that there are many men who don’t, and who can’t handle it. Why else would a certain right-wing commentator lambast a woman he doesn’t even know for simply speaking out about her right to have access to healthcare coverage for her reproductive system? Which access, by the way, doesn’t just “control birth,” but can help manage other diseases like endometriosis, which I suffer from. […]
[…] It’s pretty pathetic that there are many men who don’t, and who can’t handle it. Why else would a certain right-wing commentator lambast a woman he doesn’t even know for simply speaking out about her right to have access to healthcare coverage for her reproductive system? Which access, by the way, doesn’t just “control birth,” but can help manage other diseases like endometriosis, which I suffer from. […]
[…] we go any further: I do care about women’s health (I have my own issues that I deal with every day), and have donated to Komen by supporting friends who’ve […]
[…] am thankful that I have recovered well enough from my surgery to be able to travel to a country I have always wanted to visit, when two and a half months ago I […]
Glad to hear you are on the mend Shonali! Great to see you back!
@Ameena Falchetto Thank you!
PS – tell me when it’s ok to start being funny again…………….
@bdorman264 I can laugh with the best of ’em now. :p
How nice of you, thank you!
You can go ahead and mention me if you like…………..
Hip, hip, hooray, you are back and we’ve been missing you.
That does sound like a nasty disease (that’s the same as insidious, right). That’s unbelievable you can’t diagnose it until it’s all over you. Wassup widat?
As Adam said, can’t wait until the tweet up in F L A. I’ll make sure my phone battery is charged so I can tweet away.
@bdorman264 And your phone camera is working… can’t wait to see you!
Very glad you’re back Shonali! And looking forward to meeting you in the F-L-A.
@adamtoporek Me too!
I’m so happy you’re back! I missed you.
@ginidietrich I missed you too! I can’t tell you how nice it was to get your flowers and to talk to you. Made a huge difference. xo
Take it slow and get better, at your own pace, Shonali. Hope your talk goes well.
jd (from your backyard today)
@jdlasica I felt so bummed I missed you when you were here, JD. Thank you!
Take it slow and get better, at your own pace, Shonali. Hope your talk goes well.
jd (from your backyard today)
I’ll wish you a Refuah Shleimah (speedy recovery) and wait for your return to full time. Better to take care of things now than to “come back” too early.
@TheJackB You know it. Thanks, my friend!
Welcome back and don’t push too hard. We’ll all be here a few days later, so keep on healing.
Thanks for sharing so much of your story. As one who’s had my own share of “female issues” (read 6 months on bed rest for one pregnancy) I know how hard it is to disclose something so personal. Also, glad you liked the pies. :-) Mainly glad you’re doing better and back in the saddle again!
@mdbarber The pies were AWESOME – just what I needed. Thank you, my friend!
@mdbarber The pies were AWESOME – just what I needed. Thank you, my friend!
Shonali, glad that you’re back and more important, well!
Welcome back! You were missed.
Thank you for sharing your story with us Shonali! I am sure that I speak on behalf of all of us when I say that you are truly a remarkable woman and we are so happy to have you back!
Shonali I’m so glad to hear that you are feeling better. I’ve been thinking about you because I hadn’t seen your blog and I knew you would be offline for a while. I’m glad you’re back! : )
Thank you for sharing your story. Glad to hear you’re on the mend!
Welcome back, Shonali! We’ve missed you (truly) and have been keeping tabs on your progress. You’ve had quite an experience, and I, for one, really appreciate your willingness to be so open about it.
Don’t push yourself too hard as you jet off to Nebraska and Orlando…! :)
@PattiPalmer1 That is so kind of you to say. It’s good to be back and thank you so much for the kind welcome!
@PattiPalmer1 That is so kind of you to say. It’s good to be back and thank you so much for the kind welcome!
Glad to have you back, Shonali! Takes some serious courage to share a story like this, thanks for doing so with all of us.
@MattLaCasse Well, you’re all my peeps. If I didn’t tell you, who would I tell? The dogs are already tired of hearing about it. :p Thank you!
@MattLaCasse Well, you’re all my peeps. If I didn’t tell you, who would I tell? The dogs are already tired of hearing about it. :p Thank you!
Welcome back, Sholani. And I’m so glad to hear that it wasn’t malignant. Hope you just keep feeling better and better, and no more surgery for you!
@Neicolec Fingers crossed. Thank you!
@Neicolec Fingers crossed. Thank you!
Nothing like round the clock CNN coverage to make you have to get out of bed eh?
@hmk14 LOL, true. That and endless football on ESPN. :p
@hmk14 LOL, true. That and endless football on ESPN. :p
So wonderful to see you back Shonali! And thank you for sharing your story. Your experience contains two important lessons ….the extremely important “listen to your body” and “ask questions” message that can never be stressed enough and the “it takes longer to heal than we think” message. I have been in the healthcare industry my entire adult life as a nurse and then as a dentist and, while I know that I have always been a very compassionate care giver, I have to admit that it wasn’t until I had my own major health issue last year that I finally really “got” how devastating surgery/illness can be to our precious bodies and that we really do need to rely on the kindness of others while we let ourselves heal. Your openness is refreshing and welcome! Thank you and, from the bottom of my heart, welcome back! Keep in mind that you are still healing and don’t get romanced into pushing yourself. Be good to yourself!
Claudia
@SocialMediaDDS Claudia, such great advice, and your line, “don’t get romanced into pushing yourself” is awesome!
@SocialMediaDDS Claudia, thank you SO much. It’s also so tough on caregivers when one’s health breaks down, isn’t it? Thank you again!
So glad you are back and on the healing path. You are an awesome young woman, with tremendous courage and thoughtfulness. I can’t even imagine the ordeal you went through. (No ovaries here) Whew.
Missed you and your beautiful smile. Continue to get better. One day at a time.
Take CARE.
Al
@Al Smith You’re lucky you don’t have ovaries, ha! Thanks, my friend. :)
Congratulations on your courage and sharing for the sake of others. I’ve also been through an experience after a “basic” procedure which went bad (perforated intestine), and being told not to worry (“probably just wind”), but fortunately I did worry, did demand attention and got attention in time to avert more serious consequences. Six months to be fully recovered (I still remember – 6 weeks just recovering, 6 months at 50% energy) and now it’s just a memory. I had to do some forgiving and was determined to move on. I wish you a swift recovery and happy moving on!
@deswalsh Thanks so much – and also for sharing your story. Isn’t it incredible how many times we’re told not to worry, but if we listen to our gut, we know we need to? I’m so glad that you are doing well now. Six months – JEEZ! I’m at about 5.5 weeks and while I feel pretty good, knock on wood, I am absolutely fretting to get back to “normal.”
I will also say that it wasn’t entirely altruistic of me to write this; it helps me too, to share what’s going on with me – but I did want to post about my experience in case it could help anyone else. You never know where you’re going to find the catalyst you need, right?
Mostly just glad you’re better.
Welcome back, Shonali! I wish you well in your recovery and know you are a strong lady who can get through this. You’ll be back to blogging and teaching your “grasshoppers” in due time :)
@Krista Thank you! Speaking of grasshoppers, how have you been doing, fellow grasshopper?
@Shonali Keeping busy, that’s for sure! I decided to take one graduate class this semester. I’m not sure if I’ll go back full time or not next year. But blogging and work are going well, so it’s been a great year thus far :)
@Krista That’s excellent!
@joey_strawn @KDillabough @patrickreyes Thank you!
@shonali @joey_strawn @patrickreyes Keep on the slow and steady recovery my friend. Great to see you on the mend:)
@bdorman264 That made me laugh thank you and I’m so looking forward to seeing you soon!
@chillygal Thank you! It is so important and we don’t talk about it enough.
@JohnFalchetto That’s so sweet of you, thank you!
Ah my dear friend, so great to have you back…but be back on your own terms. No over-doing it: take it a day at a time, a step at a time (do I sound like a mother?:) You must realize that friends are here for you, regardless of frequency of posting. We’re patient: we’re here. So just take things at a slow and steady pace and the trainer in me says, “prevention is the best medicine”, and prevention means listening to your body and no exercising right now young lady! Sending smiles and sunshine your way. Cheers! Kaarina
@KDillabough Thank you! I think my body is getting ready to get back to bootcamp. I’m hoping for Nov. 1 – fingers crossed!
Great to have you back!
Welcome back! So glad you are getting back to “normal.” Thank you for sharing what you’ve been going through. Hopefully, your story will help other women become their own health advocates.
Looking forward to your thought-provoking and insightful posts!
@TabithaEdwards Thank you! It’s funny (not ha-ha funny, you know what I mean), a lot of people have messaged me privately to say the same. I think this is something that we as women have to do better about in general; being more aggressive when it comes to our own health, because we are so used to looking after everyone else. And seeing someone else speak out might make that difference.
Welcome back!
Welcome back! And take your time and heal, Shonali. I was glad I saw your post pop up in my feed but all you owe us is getting better, not blog posts!!
@jennwhinnem You are so sweet, thank you! It means a lot that you’d take the time to leave this comment, truly.
@jennwhinnem Thank you!
@jgarant Thank you!
So glad to have you back and to hear that you’re “getting back on track!” I have dearly missed your voice! I also appreciate you speaking up on the issue of Endometriosis. My mother had it and suffered terribly. She had a complete hysterectomy at the age of 31 – luckily my brother and I were very early babies! :) I keep watch on it with myself and monitor any symptoms that cause concern. I’m always put out when my concerns are dismissed. Very important to speak up, as you say, and make sure your voice is heard and your health is taken care of.
Again, I’m so glad to be here to comment and to read your words once again! You’ve been missed, my friend.
Erica
@EricaAllison See how long it’s taken me just to come back here and say “thank you.” Terrible! But I can’t tell you how much I appreciate you and everyone else being so patient with me. You ROCK.